Welcome to the Alivio Community:
Every day, spoonies use Alivio’s platform to share their experiences, connect with fellow chronic illness warriors, and build supportive relationships. Our platform enables people with chronic illnesses to freely express themselves in a safe, understanding environment where their voices and experiences are valued.
Our Commitment to You:
At Alivio, we understand the profound importance of having a safe space where chronic illness sufferers can communicate openly without fear of judgment or misunderstanding. Born from personal experiences with chronic illness, we take our responsibility seriously in maintaining a platform free from negativity and abuse.
Our community guidelines are crafted through:
– Direct feedback from our spoonie community
– Consultation with chronic illness advocates
– Input from medical professionals
– Guidance from accessibility experts
– Collaboration with mental health specialists
Our Core Commitments:
Voice & Expression:
We want every spoonie to feel empowered to share their journey openly. Whether through written posts, photos, or creative expression. Your voice matters – on the good days and even more so when sharing difficult experiences or challenging days.
Authenticity:
In a world where chronic illness is often misunderstood, authenticity is crucial. We encourage genuine sharing while protecting against misinformation and misrepresentation.
Safety:
Alivio is committed to being a safe haven. We remove content that could harm our community members, whether physically or emotionally.
Privacy:
We may collect personal information from users when they register on our forum, participate in discussions, or interact with our services. This information may include but is not limited to: names, email addresses and any health-related information users choose to share. Please refer to our Privacy Statement below for more information.
Dignity:
Every member of our community deserves respect and understanding. We actively protect against harassment, invalidation, and discrimination. Please refer to forum, community guidelines.
Community Guidelines:
1. Respectful Communication
DO:
– Use supportive, encouraging,respectful language
– Respect different perspectives and experiences
– Share your story while acknowledging others’ experiences may differ
– Use content warnings for sensitive topics
DON’T:
– Shame or invalidate others’ experiences
– Give unsolicited medical advice
– Use hostile or aggressive language
– Share misinformation
2. Privacy & Confidentiality
– What’s shared here, stays here
– Respect anonymity preferences
– Never share personal medical information of others
– Ask permission before sharing someone’s story
3. Content Guidelines
Acceptable Content:
– Personal experiences and insights
– Coping strategies
– Support requests
– Product reviews and recommendations
– Wellness tips
– Positive achievements
Prohibited Content:
– Medical diagnosis or treatment advice of others
– Hate speech or discriminatory content
– Spam or excessive self-promotion
– Graphic medical content without warnings
– Political or religious debates
– Adult or inappropriate content
4. Product Discussions
– Share honest experiences
– Disclose any affiliations
– Focus on personal experiences rather than medical claims
– Respect that what works for one may not work for all
Group Creation & Management Guidelines
Creating & Managing Communities:
Admin Responsibilities
– Admins must represent themselves authentically
– Act as community leaders and caretakers
– Promote safety and well-being of community members
– Actively moderate content to ensure compliance
– Review and approve content thoughtfully
Group Creation Rules
– Groups must align with Alivio’s Community Standards
– Purpose must be clearly stated and maintained
– Original content must be properly attributed
– Group names must be appropriate and free of profanity
– Group purposes cannot be significantly altered after creation
Direct Messaging & Virtual Meetings:
Direct Message Guidelines
– Respect boundaries and energy levels
– Honor preferred contact times listed in profiles
– No unsolicited medical advice or product promotion
– Report inappropriate messages immediately
– Use status indicators to show availability
Virtual Meeting Safety
– Zoom meetings must be registered through platform
– Clearly state meeting purpose and duration
– Use waiting rooms for security
– Record meetings only with explicit permission
– Respect “spoon-friendly” meeting lengths
Account Suspension & Termination Policy:
Compliance Requirements
– All members must follow Alivio’s User Agreement and Community Guidelines
– Compliance with individual group rules is mandatory
– Features and benefits access is tied to good standing
– Violations may affect participation across all platform areas
Violation Consequences:
Temporary Restrictions
– Limited access to specific features
– Temporary suspension from groups
– Restricted posting/commenting abilities
– Reduced direct messaging capabilities
Permanent Measures
– Account termination
– Loss of all platform privileges
– Removal from community groups
– Loss of hosting/admin privileges
Impact on Benefits
Members facing suspension or termination may lose:
– Group administration rights
– Content creation privileges
– Direct messaging access
– Virtual meeting hosting abilities
– Forum participation rights
Appeal Process
1. Submit formal appeal within 14 days
2. Provide context and corrective actions
3. Demonstrate understanding of violations
4. Wait for review (typically 48-72 hours)
5. Accept final decision
Reinstatement Requirements
– Complete mandatory community guidelines review
– Sign updated user agreement
– Participate in orientation session (if applicable)
– Accept probationary period terms
– Agree to enhanced monitoring
Updates & Amendments
– Guidelines reviewed quarterly
– Community feedback welcomed
– Changes announced with 30-day notice
– Archived versions available
Last Updated: May 2, 2025