Welcome to the Alivio Forum
Meet your spoonie tribe!
Joining the FREE forum unlocks real support for spoonies, by spoonies. As a member, you’ll get:
- Open forums for daily support and advice
- Condition-specific groups to find your people
- Private messaging for one-on-one connection
- Virtual meetups and community events
- Monthly loyalty point giveaways and rewards
A Space Built for Spoonies, by Spoonies
At Alivio, the vision is to create a space where every person living with chronic illness feels seen, heard, and supported. The forum is more than just a message board. It is a home base for connection, kindness, and practical support. Here, anyone can share a journey, ask questions, celebrate wins, and find real understanding from people who truly get it. Whether seeking advice, friendship, or just a safe place to vent, there is a place here for everyone.
Our Commitment to You
Having a safe, welcoming environment is essential. That’s why Alivio is dedicated to keeping the space positive, inclusive, and spoonie-friendly.
The approach is shaped by:
- Direct feedback from the community
- Collaboration with chronic illness advocates
- Input from medical and mental health professionals
- Guidance from accessibility experts
Our Core Values
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Voice & Expression:
Every fellow warrior should feel empowered to share a journey. Every voice matters, whether celebrating a win or working through a tough day.
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Authenticity:
Real stories and genuine sharing are valued. Misinformation and misrepresentation are not tolerated.
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Safety & Privacy:
Content that could harm members, physically or emotionally, is actively removed. Each person controls what is shared and how connections happen. Boundaries are respected.
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Dignity:
Every member deserves respect and understanding. Harassment, invalidation, or discrimination are not tolerated.
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Accessibility:
The site includes an accessibility widget to adjust text size, contrast, and other settings to fit individual needs. This makes Alivio usable for everyone, no matter energy level, vision, or brain fog.
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Spoonie-Centered Design:
The interface is designed for fellow warriors. Gentle colors, clear navigation, and easy-to-read layouts make participation brain fog friendly and stress-free.
Getting Started
Getting Started
- Click “Sign Up” to create an account. Complete a profile with a story, conditions, and a friendly photo.
- Head to the Welcome & Announcements forum to introduce yourself.
- Read the full Community Guidelines for all the details on how to make the most of Alivio.
Community Rules
Community Rules
- Respectful communication is a must. Support others and use content warnings for sensitive topics.
- Privacy is sacred. Never share someone else’s story without permission.
- Share experiences, not medical advice. What works for one might not work for another.
- No hate speech, discriminatory content, spam, or graphic medical content.
- Product discussions should be honest and transparent.
Read the full Community Guidelines here.
How the Forum Works
How the Forum Works
- Alivio’s public forums are organized around the elements that connect everyone, regardless of diagnosis.
- General Topics: Forums about relationships, career, mental health, brain fog, pain, fatigue, and more are open to all. Advice and support can flow freely between all chronic illness communities.
- Condition Groups: Connect with others who share a specific diagnosis. These groups help find targeted support but remain public so everyone can benefit from shared tips and feedback.
- Collaboration Over Segregation: Unlike private Facebook groups, Alivio’s open approach means valuable advice, hacks, and encouragement are not locked away. If something helpful is shared, every spoonie can see it.
- Private Groups: Private groups or sub-groups are available for sensitive discussions or smaller circles, but openness and collaboration are the default.
Connecting With Others
Connecting With Others
- Groups & Circles
Join or create groups for diagnosis, interests, or local area. Groups help find people, share tips, and build lasting support networks. - Virtual Meetings
Attend or host spoonie-friendly virtual meetups, support sessions, or topic chats. Designed for all energy levels, these make it easy to connect face-to-face even on low-spoon days. - Private Messaging
Reach out one-on-one for personal support, to make a new friend, or to check in privately. Direct messages can be managed and preferred contact times set. - Following Members
Follow fellow warriors whose posts resonate. Receive updates when they share new tips, stories, or resources. - In-Person Events (Launching Soon)
Plans are underway to launch in-person meetups and events so local spoonies can connect. Watch this space for updates.
Sharing Your Story & Advice
Sharing Your Story & Advice
- Public Forums
Post questions, share experiences, or offer advice in open forums like Brain Fog, Pain, Relationships, and more. Insights help everyone, regardless of diagnosis. - Condition Groups
Share targeted experiences and symptom hacks with others who share the same condition. These groups are public so tips and encouragement can benefit the whole community. - Milestones & Wins
Celebrate achievements, big or small, by posting in the forums, sharing in groups, or adding to a profile timeline. Every win counts and these stories can lift others up. - Resource Library
Discover and contribute articles, downloads, guides, and helpful links for living well with chronic illness. Search by topic or crowdsource answers from the community. - Product Recommendations
Review, recommend, or ask about products, gadgets, and comfort items. Honest feedback from real spoonies helps everyone make better choices.
Personalizing Your Experience
Personalizing Your Experience
- Profile Customization
Add conditions, a personal story, and update a photo and bio to reflect a journey and let others know what you’re about. - Notification Settings
Choose how and when to receive updates by email, in-app, or both. Stay in the loop in whatever way works best. - Bookmarks, Folders & Saving
Save posts, threads, or resources to revisit later. Organize saved content in folders for easy access, perfect for brain fog days or when building a personal resource library. - Privacy Options
Control profile visibility, post anonymously if preferred, or join private groups for more sensitive topics. - Spoonie-Centered Design
Gentle colors, clear navigation, and easy-to-read layouts make participation simple and stress-free. - Accessibility Widget
Adjust text size, contrast, and other settings to fit individual needs. Alivio is built to be usable no matter energy, vision, or brain fog level.
Rewards & Gamification
Rewards & Gamification
- Gamification & Leaderboards
Earn points for contributing, supporting others, and sharing resources. Top members on the leaderboard unlock special perks. - Loyalty Program Integration
The online store and forum are connected. Monthly loyalty point giveaways, competitions, and events reward top contributors with points, discounts, freebies, and VIP access. Activity in the forum can earn real rewards in the Alivio shop and vice versa. - Exclusive Opportunities
Top contributors may be invited to review new products, give feedback, access paid or employment opportunities, or join the brand team.
Help Shape Alivio
Help Shape Alivio
- Help Desk
If stuck or have a question, message us in the chat box for step-by-step support. - Suggest a Feature
Share ideas for new features, improvements, or events. Alivio is built with community input, so feedback truly shapes the space. Send it to us either via the form on the contact us page or message us in the chat box
FAQ
Participate in discussions, help others, and join events to earn points and unlock rewards.
Yes, members can start new groups and suggest or host virtual and in-person events.
Click the report button on any post, message or person. Our moderators will review it promptly.
